Christian Rubio

EverythingALS

BIOGRAPHY

Christian Rubio is the executive director of EverythingALS, where he leads a biopharma consortium focused on real-world data and digital biomarkers to advance ALS research and care. He brings deep experience in digital health, rare disease advocacy, and data strategy, building impactful initiatives from early stage to scale.

Christian has led programs across biotech, nonprofit, and health tech sectors, driving regulatory engagement, patient-centered research, and data infrastructure. His work with organizations like the FDA, NIH, and the Rare Disease Diversity Coalition supports greater inclusion of patient voice and digital tools in shaping the future of medicine.